Thursday, August 25, 2011

Social Security letter

Last week I finally received a letter from Social Security telling me what the decision was in my SSDI hearing. They denied me again. This is the third time. That was a really rough day. I was feeling pretty depressed and hopeless about this whole process, but as I rolled over in bed and read the latest tattoo that I'd gotten, I told myself that I'm not giving up and this is not going to get the best of me.

About 2 1/2 weeks ago I got the word "persevere" tattooed on my right arm where I could easily read it. It was a word that I've been wanting to get tattooed for a while now and it's already helped me during a time when I was emotionally distraught.

I've called my attorney to tell him to go ahead with the appeal process. I'm gonna get disability. I'm not gonna let this long legal process get the best of me. God knows I'm familiar with all the bull you have to go through with the legal system after the car accident lawsuit I had gone through.

I hope you're all feeling well today and that you won't let the pain or others get the best of you either. You're not alone. Take care :)

Friday, August 12, 2011

Still No News...

Still no news from Social Security. It's really getting irritating so I'm going to call my attorney's office on Monday to see if they've heard anything regarding my case.

Yesterday I had had plans to hang out with a friend and get outside. When I was putting my make-up on a really sharp pain started to throb in my side, nearly bringing me to the floor. I started to shake, sweat, and I thought I was gonna throw up. I was fine one minute, and the next a pain flare-up hit out of nowhere. This is what makes Fibromyalgia so unpredictable and make working a real job with a schedule, nearly impossible.

Today, I woke up with some back pain and feeling rather tired. About an hour after being up I began to get more achy and felt like rain was coming. I thought I'd do a little experiment and text a Fibro friend of mine and ask her if she felt like it was gonna rain. She felt the same way I did: achy and tired. So I went to and checked what was in store and sure enough, rain, rain, and more rain. We're little human barometers, we are. Fun party trick, eh? Not really.

On days like today, when the humidity gets worse and rain is coming, it's really important for people with Fibromyalgia to pace themselves. Don't overwork yourself with household chores and such, it could cause you to flare-up rather quickly. Be aware of how your body's feeling temperature wise and dress accordingly. Our bodies have a hard enough time maintaining a stable temperature and when the weather changes it can make our systems go haywire.

Take care of yourselves and know you're not alone :)

Wednesday, July 20, 2011


Social Security....right...last topic. I'm still waiting. I had my hearing on Jan. 24th of this year and was sent to see a mental health doc on June 24th, to make sure the pain's not in my head I suppose (like many experts and non-experts like to assume). Still no word on getting disability...I hope I hear soon.

Gone Away

I was asked why I hadn't kept up with my pain blog and I don't really have an answer. The best I could come up with was that my life's been turned upside down over the past I don't know how many months...and a year or so apparently, and I lost it. But I'm back and I've never lost the need to help my fellow Fibromyalgics out. And sadly, I'm learning that there are more and more of us out there every day. It's kindof scary. Chronic pain seems to be sprouting up everywhere lately and those who are newly diagnosed should never have to navigate through this overwhelming experience alone. That's why I started this blog and that's why I will continue it. It's also why I'm very serious about writing a book about all of this. Most texts out there are medical and we all need more of a personal look at what the day to day really looks like and how it impacts us, the people we love, and those who care about us. You guys are not alone. All questions are welcome and I will do my best to help you out to the best of my ability.

I hope you have a relatively pain-free day with people who make you happy :) ((gentle hugs))